What's That Growing In Your Head?

For various reason, none of them having to do with common sense or regular health care checks I went to a neuro-ophthalmologist so that I could get an official letter which says in short "She really, really, really can't see worth a damn. She has not been faking for 54 years so cut her a break."

I HATE going to the eye doctor. I have a rare genetic condition so they always get all excited, put me through a multitude of test to prove yet again that my vision is laughable, charge me an arm and a leg, demand follow-ups and gleefully rub their hands together in a Simon Legree sort of way while they say "Whoa Nelly, your eyes are horrible and there is no fix. Sucks to be you!" If I hadn't needed the letter for work I would have happily gone on, staying in familiar places and firmly holding on to my seeing eye people for the next forty or so years.

I arrived begrudgingly, agreed to a test that maps one's vision with a curt nod, sat in a horribly uncomfortable chair with my chin in a cup and my head in their machine and waited for tiny lights to start zooming around, clicker in hand. When you see a light, you click the button. This is simple.

The woman helping me was sweet and quiet for a minute and then asked did I not see any at all. 

"What? What? You started?"
"Just click the button when you see the light flash."

Crap. No lights, I stare straight ahead willing the little points of light to appear. As if by magic three or four bright flashes appear in a row, top left, click click click. Then, nothing.... 

Quick! three or four bright flashes appear in a row, bottom right! Click click click.... I do an extra click just in case I miss counted.

Nothing! I can't cheat since I do not really know where or when the flashes will appear, but I would, if I could. Test over. The lady is now smiling at me with a touch of pity. 

"You did real well."

Liar! I want to beg to do it again. I stare balefully at the machine, sitting there like a piece of modern sculpture, taunting me. I want to cry.

The last time I did this test the map it made of my eyes looked like a target, circles of no vision radiating out like waves from the center. This time it looks like a butterfly, with the wings and body having no vision at all. It looked bad, and dark and absolutely terrifying to me.

My vision sort of resembles this Rorschach ink blot

The doctor, wasting no time, not being gleeful and not rubbing his hands together says, "Yep, you definitely have  genetic neuro-scatomatas. HOWEVER..." 

I feel myself shrinking.

"Usually when we see this 'tubing' it is caused by something pressing against the optic nerves"

I shrink more. I feel like I am six.

"Usually an enlargement of the Pituitary glad. Maybe surgery is an option. We can't fix the genetic defect (No shit Sherlock) but sometimes reducing the pressure can help to return the vision to it's pre-swelling state."

I feel like a toddler walking out, lost and alone, looking for my sister who has driven me here. Everybody in the waiting room is acting like nothing has changed. Everybody in the waiting room is reading, toe tapping, finger drumming, waiting to get their new prescription and get in their cars and drive off into their normal life. 

The right side of my brain is saying "This is bad, this is serious, this is NOT GOOD" The left side of my brain is saying "Oh look! A butterfly! (Here the left brain shrieks and makes an about face. I suddenly do not like the looks of butterflies) I want a cookie, maybe a couple of dozen. Isn't the sun nice! What shall we cook for dinner? I like red, it is such a pretty color. That machine has a nice rhythm. Doodly doo doo doo doo doo."

By the time I got home my right brain was speaking in a much firmer tone of voice... "THIS IS BAD, THIS IS SERIOUS, THIS IS NOT GOOD!" and the left side had retreated into a corner, fingers in ears saying "LA LA LA LA I can't hear you" but had given up the good fight. I turned to Dr. Google and looked up swelling in the pituitary.

I read a lot of articles, spending roughly three hours on different sites but the end result was always the same. TUMOR TUMOR TUMOR. Oh crap and eff me.

The good news? Tumors in the pituitary are self contained, not malignant. Bad news they can only be treated by radiation or surgery, and the underlying cause can be treated, sometimes, depending on what it is. I was not a happy camper.

I am having two MRIs this Monday, one with contrast, one without. I am hoping (Yes, with my left brain) that this has all been a giant scare and that the next time I take the test from hell I will once again have lovely targets of blindness and the evil tubing will be gone. Wish me luck!

The Joy of Finding Stuff

I haven't been in this house long. I come in from the outdoors where I feel totally at home and find myself in some strange twilight world surrounded by boxes and barrels and bags. A haphazard maze beckons me with its mystery. Should I go left and open a neat clean box, taped carefully, unlabeled as are most of the rest, or should I cut apart the twine holding together the handles of the Disney Store bag and see what delightful possessions are making it bulge? Should I cut through the layers and layers of tape holding together a box which has been used to hold goods many, many times, its various labels, handwritten or printed by machine overlapping each other, black, red, blue, white and green looking delightful and happy together? I see a box that had held a space heater, a piece of masking tape over the bright image and lettering factory printed on the box saying only, teasingly, "STUFF". I WANT STUFF! I NEED STUFF!

Hang on now, what if it just that, just STUFF, nothing worth naming specifically? Perhaps the contents of the junk drawer in the kitchen, the paper clips, rubber bands and expired coupons, picture hangers and batteries (dead or alive? who knows but I can't throw them away), box tops and marbles and shoe strings and nail clippers and stubby pencils and dried up pens and mysterious phone numbers on the backs of envelopes or the cleaning supplies and extra rolls of paper from under the washroom sink. Maybe it is even worse STUFF, like crap I swept into a dustpan from the garage floor? Screws and nails and bits of wire and nuts and bolts and teeny Allen wrenches and dust and wire nuts and fish hooks and, well, you know, STUFF? I thought I had labeled those boxes GARAGE STUFF but I admit it. I am a slack labeler. I may not have gotten the word GARAGE on there at all.

Maybe it is personal STUFF. Knitting needles and yarn from my bedside table. Massage lotion (that's right, I said it, I ain't skeert), the book I was reading before the move which seems to have disappeared, six keys that go to God knows what, but when I find whatever it is I am sure it will be locked. A coin from Panama, where I have never been, a china dog my youngest daughter gave me when she was seven. Some loose Tums and Motrin PMs, 3 unmatched socks and a back scratcher. All of these things should be in a box somewhere, labeled PERSONAL STUFF but I haven't found it yet. Maybe I am just mis-remembering and it just said STUFF, or, knowing me, had no label at all.

I pick up the box and shake it. I can feel something heavy and off balance shifting, I hear rattling of copper and tinging of tin and silent noise of plastic bending.

I am doing it! I am opening this box next. I can't wait! I am getting my STUFF back! I slice open the tape, giving myself an adhesive rimmed paper cut in the process, I rip the flaps open and what do I see? Random freaking stuff, not STUFF like I had hoped but regular old running around while they loaded the truck picking up mismatched and forgotten items and tossing them in a box stuff. Two plastic coat hangers, a windbreaker, a Christmas ornament, a pot lid, a dust pan, a wonderfully silly tall top heavy metal sculpture of a frog, the key card for the community pool and the key to the large ornamental gas fireplace at the rental house. Two back issues of Southern Living and a wash cloth pad a cheap vase and one shoe sits sadly in the bottom.

Next time I am going for the bag...